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Terminologies - critical but often deferred in FHIR application development

  • Monday, 11 February 2019 11:05
  • Written by 

The Health Level 7 (HL7) Fast Healthcare Interoperability Resources (FHIR) standard is getting widespread support and gathering momentum in adoption. In compliance with this standard, we’ve developed FHIR-compliant Application Programming Interfaces (APIs) for our terminology server, the 3M Healthcare Data Dictionary (HDD), and our team actively participates in FHIR initiatives and discussions. globe laptop400
We’ve attended HL7 meetings and FHIR connectathons, and you can view our thoughts in our previous blogs. A new activity we started participating in is the HL7 FHIR Applications round table. At this event presenters are given 15 minutes to demonstrate their FHIR compliant tools and services they provide to the market. These products range from Personal Health Records (PHR) and Electronic Health Records (EHR) to Health Information Exchanges (HIE), and there are also applications that implement FHIR services to support these platforms.
With terminologies being a foundational piece of implementing much of the FHIR specifications, I was surprised to see that only a handful of these demos mention standard terminologies. With technical difficulties that inherently seem to occur with live demos, that 15-minute time slot becomes very short to touch on every detail, even such an essential requirement as standard terminology implementation and support. Fortunately, I was able to track down presenters to dig in deeper. We found various situations were in play. Some products did not have a need for terminologies, while others said that they were in the process of evaluating a terminology server. The most interesting was those who had built a viable product without a terminology server chosen and in place. I was curious as to why terminology implementation was not included in their early planning – don’t they know the importance of terminologies and standardization of data, or do they simply not care?
After conversations, I concluded that the answer was, “Yes, they do understand that it is necessary, and if not done the right way, it can end up worse than not doing it at all.” However, due to various business or technical reasons, they decided to “act first and worry later”. There are also some who felt that their terminology needs are small and that a robust terminology server was not necessary. I wondered if this strategy was short sighted but without a deep dive into the specific products, it was hard to determine the answer to that question. One thing I’ve learned is that “standard” does not equal “simple” – medical terminologies, reflecting the art of medicine, are complex, frequently confusing, and takes dedicated effort and experience to master.
It was clear to me that while we’re all dedicated to making medical data useful for clinicians and patients, we’re each working on one piece of the puzzle. As the HDD team is heavily involved in informatics and specializing in terminology maintenance and mapping, how can we help the industry to start the implementation of data standardization earlier in the process to allow integration to be as seamless as possible? We’re already sharing our knowledge and experience by attending HL7 and other standards and informatics conferences; perhaps we need to engage more in “outreach” efforts or explore how to move terminology implementation towards a more “plus and play” approach – in line with the FHIR vision.

 

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  • Last modified on Tuesday, 26 September 2023 14:45